At the time I was (and still am) fighting to get my son 1:1 support for the whole time he is at school, for one. I think it is ridiculous that they have acknowledged that he needs support at all times (as suggested by the fact that they have covered lunchtimes) but yet wont fund the 30 hrs he is there. I keep hearing how “lucky” we are that he has been given 20 hrs, and I’d also like to hope that he will be okay without support – but it not only frightens me to death but the school have said to only send him in part-time.
I’m very very grateful to the amazing playgroup who helped us get this far and they also made a photo book (showing him in playgroup and the same situation at school). We have been looking at it now and then over the Summer. It’s hard because when we do he gets upset and his behaviour isn’t as ‘easy’ – but it’s important to do as I cannot imagine how he would be when he starts otherwise.
That and the fact that no-one has done anything about difficulties with his hand up until me pestering now (the OT was very nice and helpful though). She has given me a Sensory Profile Questionnaire – so that it may be easier to get him a diagnosis (if he has SPD obviously – I think he does). Of course we are still waiting for the specialist to see if he is diagnosed as Autistic – but hey his brother was 10 and never had a statement – so it is all going well.
So what’s with the bottle? It’s actually part of the “normal” stuff to do with starting school – in that it reminded me of a milk bottle. I stuck it in the bathroom and put my toothbrush in it – as a reminder that I really needed to register my son for free milk. I’ve since managed to get the uniform! Now just the shoe shopping!